Tuesday, November 28, 2006

New Pic's

See below pictures of Evan's little Sunday School class singing "This Little Light of Mine." What sweethearts! Evan did sing but, only when they placed the microphone in front of him and the rest of the time he stuck his tongue out!









We decorated our house on Sunday and Evan loved helping ; ) he hang all of the ornaments that he got out of the box on the same limb ; 0 I tried moving them when he wasn't looking but he knew and he would say, "Mommy that one was mine and I want it here!"

Thankful

We were on the holiday run all last week so this has been my first chance to do a Thankful post. I'm known in my family for being full of drama and a bit of a complainer - hey, I'm being honest here. Although this is probably true, there are many times after the drama ends and the complaints are voiced that I sit back and see how truly blessed I am. Several topics come to mind that I'm thankful for this year. First of all is my faith in Jesus Christ - I know that I would not have made it through the last few years without my faith in him. I have failed him more often than I care to admit here but I'm thankful for his saving grace and like I said when the complaints are voiced I often turn to prayer and am reminded that there is so so much to be thankful for. Evan - I'm so thankful for my beautiful little boy. He smiles, his hugs, his smooches, everything about having him in my life has made me a better person. Just last night I told him this Friday I would take him to see Santa Clause and he started naming off everything he would tell him he wanted and then he turned to me and said, "Mommy, I'll tell him you want that new vacuum cleaner (Dyson)" I was so touched that he remembered me saying something about that. He can certainly be a handful but a sweetie too! Two Sunday's ago his Sunday School class sang "This Little Light of Mine" in the service and tears filled my eyes seeing our little miracle up there singing away with all the other kids - what a gift he is! It has been a hard few years for my husband and I as far as our relationship goes - I'm so thankful that we stuck together and made it through such a hard time in our lives and that we never gave up. We were always the couple everyone envied and when we started our CHD journey with our only child we lost sight of each other and I'm thankful we found it again. I'm thankful for many other things but the last I'll go into detail here is I'm so very thankful for my Mom. My Mom without many complaints, keeps Evan everyday so I can work and help Eric provide a home and insurance for our family. This has been such a blessing to us to know that he is cared for by someone we trust completely just minutes from my work. He loves being with his Mamaw, Thank you Mom.
Hoping all of you had a wonderful Thanksgiving! Blogger is being a pain - so I'll have to post some new pic's later.

P.S. Becky - I'm so sorry we were unable to get together while you were in town - my parents decided to have their Thanksgiving on Fri. so we were there all day and then we had family members that came in from out of town Sat. for a surprise b-day party for an Aunt. I hope you all had a great time visiting with your family and a safe trip home.

Thursday, November 16, 2006

Good News




















Just got home from our appt. with Evan's cardio, Dr. McOmber. He said that everything looked great on all reports (EKG, echo and listening)! He also told us that because Evan's heart looks so good that we can quit the Digoxin and Aspirin - don't know quite what to think about this yet as we have been on both for so long, especially the Digoxin - since Evan's surgery 2 years ago he has been on the Digoxin all but one month (they quit the Dig. at one year post op and then our very next appt. is when that pesky pulmonary artery showed narrowness so they put him back on it.) I did mention the out of breath and Dr. McOmber said that again, Evan's heart looked wonderful and that he would mention it to the pedi. just in case it had to do with possible allergies/asthma. They did send him home with his yearly holter - fun, fun. He said we had to get at least six hours of recording to not have to do it again so I'm praying that he will leave it alone at least until morning! Enjoy the pic's from our Huber's Orchard trip and some pic's of Evan and his beloved cardio, Dr. McOmber.

Tuesday, November 14, 2006

Cardio Appt. this Thur.

I've been busy the past few day's with Eric gone, trying to keep Evan entertained when he is bored of me and wants his daddy! I took the day off yesterday and took him to Huber's Orchard and we did all kinds of fun stuff even though it was crazy cold up there. I'll update pic's from that when I get home tonight. It was kinda sad, Evan wanted to throw a penny into the wishing well and wished for his daddy to come home. He is so not use to not seeing both of us everyday and Eric has been gone since last Fri. I'm so thankful my mom has stayed with us and kept us company! I'm sure she's ready to be rid of us!!! A fellow heart friend had his 3rd b-day party last Sun. and Evan had a blast, they had the Tumblebus come and stay for an hour - (Tumblebus is a school bus that has been gutted and has a springy floor, slide, trampoline, monkey bars and just lots of fun stuff inside) - Happy Birthday Lucas!!! Evan has a cardio. appt. this Thur. and I'm anxious to see how things are going - things on the outside appear to be going great other than some out of breath moments when he is really playing hard ~ any other heart parents kids have this symptom - Evan has always gotten out of breath when he is really jumping and running around and they have said before that he might have asthma but I've also heard that is a sign of the pulmonary artery narrowing (which was stented last April) and not enough blood going to the lungs and that this could be serious so I'm definately going to bring it up at his cardio appt. They had said that he might come off of Digioxin and aspirin if things looked good at this appt. so I'm looking at the Dig. bottle this morning and thinking we don't have enough to last until Thur. - might have to buy another bottle even though we might be done with it. It might snow this Thur., I can't believe it! Evan thinks if it snows that it means Santa is coming!!!

Monday, November 06, 2006

Make Believe Friends

Just had to do a quick post and say that Evan came into the office tonight while I was investigating Judge candidates for the election tomorrow and told me that, "OG and OV are in the hall and we need to go talk to them," I asked him who is OG and OV and he said they were his friends and asked if he could call them so I handed him a phone and he said, "Hi OG are you here" then asked me, "Mommy do you see them?" I'm thinking ummmmm..... no and then he asked if he could make a card for them. After coloring a nice card he told me that him and OG were ready for a bath!!! Where is this coming from??? Anyway, just had to make a quick note of this, I've got to go give OG and Evan a bath!!!
Sorry so much silence this past week or so and for no pictures from our celebration for Evan's 2 year post-op. It rained so hard that I thought I was going to have to turn around and go home and ruin my diet by Evan and I eating all those cupcakes myself!!! It was all I could do to grab the container of cupcakes and Evan and run in the doctors office - we still got soaked!! Besides, Evan's beloved cardio - Dr. McOmber was busy with a patient and we weren't even able to see him so we visited with the nurses and then went on to the pedi. to drop their treats off. When I got to the pedi. the nurse said, "Oh, hi I was just getting ready to call you b/c we finally got the flu shot in for Evan's age and weight group - do you want to do it while your here?" I had been waiting for that to arrive and didn't want them to run out and Evan not get it so I agreed. When Evan found out we were staying there for a reason other than delivering treats he was soooo upset. He kept crying and crying and saying, "Mommy you said we were delivering treats - no shots!!!!" I'm sure when all was said and done that everyone at that office was glad to see us go and I was glad to go! It was fun but I could have done without the rain and the flu shot! We have a busy week coming up - Daddy and Papaw leave for their yearly hunting trip this Fri. and will be gone for a week! Mamaw and I will be staying together and enjoying some shopping, Evan willing, and not cooking! I look forward to this time I get to spend with my mom but it always makes me realize how much I depend on Eric, I'm going to miss him. Evan's checkup with the cardio is on the 16th of this month so pray that things are still going well and that he can possibly come off of Aspirin and Digoxin. His little legs are so bruised from jumping around and just playing rough he is all boy, he bruises so easily!

Thursday, October 26, 2006

2 year Post-op Anniversary Today!!!



















I cannot believe it has already been two years ago today that we handed our little Braveheart over to Dr. Austin for repair for Tetralogy of Fallot. Last night I was thinking back to the night before and how we took pictures of Evan all day long and told him he was going on a mended heart trip. I remember when we left pre-op that day that we let him have ice-cream and took pictures with his pumpkin in his costume since we would be in the hospital for Halloween. I remember rocking him to sleep and singing to him and once he had fallen to sleep rocking him and praying to God to please protect him and to let the surgery be a success and to protect the surgeon and Eric coming in and telling me to lay him down and us both sobbing once leaving his room at what tomorrow would hold. Worrying that he would wake up after midnight and want a bottle and what in the world we would do. Thankfully he slept that night. I remember trying real hard to be strong walking into the hospital that morning and looking around the waiting room and wondering if everyone else was as scared as we were. Things went fast after we went back and they anesthesiologist came and said we'll be ready in just a few minutes and all I wanted to do was run with my baby. They came and I thought I would collapse watching them walk away with him. Heart families also have their own waiting room so we went there where friends and family were waiting for us and we waited. The first update I will never forget, the nurse came in and told us that Dr. Austin had rocked Evan to sleep, that meant so much to us to know he was being cared for in such a compassionate way. We held our breath for the hourly updates from our nurse and when they came with news we prayed and then began the wait again. Seeing him for the first time after surgery was scary. I looked beyond the wires and tubes and saw my little baby and began to sing our song that we always sang to the tune of "Que Sara, Sara", "When I was just a little boy, I asked my mommy what will I be, will I be handsome, will I be bright and here is what she said to me, Hey Evan, Evan, whatever will be will be, the future's not our's to see, Evan, Evan what will be will be." The next few days were rough and I became addicted to the monitors and drove the PICU crazy and then just six days later we were headed home.

Eric and I watched the HBO film, "Something the Lord Made" last night and after the movie was over I just kept thinking, "Wow, we have those two men who innovated heart surgery that our little braveheart is alive today." Great movie and I highly recommend you heart families out there to get it. Tomorrow I have the day off and Evan and I are delivering muffins and cupcakes to the Doctors that are over Evan's care. Evan is excited to see Dr. McOmber, his beloved cardio.

Today is an important day for another reason, It is Eric's 33rd Birthday!!! When they called 2 years ago and told us the date I just looked at Eric like ??? and he instantly said, "This will be the best birthday present ever!" That is him, my unselfish husband that thinks of Evan and I before himself always. So tonight we are celebrating with his favorite dish and cake and then tomorrow night with his extended family. Happy 33rd Birthday Eric, we love you!

Sunday, October 22, 2006

Pic's from Boo at the Zoo



Finally uploaded some pictures from our Boo at the Zoo trip last Sunday. We DID NOT go to Waverly after trick or treating!!! Not only am I a chicken but I also see no need to go somewhere where I know all that will happen is that I will scared to death and cause myself to have nightmares. I just decided that there was no point in putting or opening myself to that scariness to just say, "I toured Waverly" and although everyone else still wanted to go their dreams got shattered when they called and they told them they were sold out for tours until next year!!! I've been pretty emotional this past week, no I'm not pregnant, just thinking about what was happening 2 years ago at this time. Evan will be 2 yr. post-op this Thur., Oct. 26th. We carved pumpkins tonight, Evan wanted one big one and one little one and on the way home he told the little one, "Don't be scared, we are going to take good care of you!" He asked if we could keep the little one inside so we just painted it, much fun! We are planning a very special day this Friday to celebrate! Be sure to look for some cute pic's this Friday!

Friday, October 13, 2006

Croup

Evan has not been feeling well. Woke up last Sat. night coughing and couldn't stop. We took him into the bathroom with the shower running on full hot to try to help things, it really sounded like his airway was shutting off and I was debating on a trip to the ER. He could not lay down, even reclined, if he was on his back in any way he was coughing. I ended up sleeping from about 3:00am, holding him in his bed leaned up against the wall, hard to do now that he is 37 lbs. I tried to take him to the recliner but he cried (which made the coughing worse) wanting to stay in his room. We made it to morning like that and I called our emergency # at the pedi. office and they opened to see him. It was croup and they put him on a 3 day steroid and Benedryl. Poor little guy, he really had me worried. Sat. night my mind was spinning thinking about how this is the first year since his birth that we haven't had RSV shots during these months and then the what if's and what should I do's started. I was so thankful for our pedi. office opening up Sun. morning to see him! He is doing better, still a little cough but lots better. We have our local Arts & Crafts fair this weekend so I believe my DH is going to keep Evan and let my mom and I have some fun shopping so I'm really looking forward to that. The zoo here is opening at nights on the weekend for Boo at the Zoo where you can dress up and go trick or treating there. We had planned on doing that this Sun. evening with some friends but we will have to see how Evan is doing. He is going to be a T-Rex for Halloween and is so excited about that. We (Eric and I) have been asked to find a baby sitter after the zoo trick or treating and all us adults go to Waverly Hills Sanatorium for a tour. I'm scared to death but Eric thinks it would be really neat to go tour it. For those that aren't familiar it is an old hospital that was built for the tuberculosis epidemic in Louisville in 1926 you can read some about it here; http://www.prairieghosts.com/waverly_tb.html. I haven't made up my mind as to if I'm going but if I do I'll have lots to write on Monday because I'm already terrified just thinking about it. Have a great weekend!

Monday, October 02, 2006

Team Bravehearts 2006 #1 Friends and Family Team























What an awesome day we had this past Saturday down on the river for the 2006 Kentuckiana American Heart Association Heart Walk. I would say we had about 50 people wearing our Team Brave Heart's t-shirts, representing 7 different families whose children have been born with a congenital heart defect. The Courier Journal talked to myself, Lucas' mom and Ben's dad and did a little write up in Sundays paper
http://www.courier-journal.com/apps/pbcs.dll/article?AID=/20061001/NEWS01/310010006&SearchID=73258632327851 although I don't remember saying exactly what she wrote and I'm also not 30 (yet), she asked me how it is having a child with a CHD and I think I said, "You try to live as normal as possible but in the back of your mind their is a constant worry that something might be wrong" and "We are here to raise awareness and funds for congenital heart defects to help other families like ours and hope that they can find out why this happens." It was crazy though and she did a good job. We were also approached by WHAS 11 News and went over what questions were going to be asked and then the reporter said, "Okay, we go live in 15 minutes" and I was like "Ummm, the walk starts in 5 mintues" so she wrote down some stuff, not sure if she talked about it or not but we really wanted to be a part of the team and walk together so we went on. Our team raised over $16,000 and we raised $1825.50 and were awarded the #1 Friends and Family team in Kentuckiana, what an honor! Thanks to everyone that donated! The walk is such a wonderful way for us (Team Bravehearts) to raise awareness and just honor our little ones.



Saturday, September 30, 2006

AHA Kentuckiana Heartwalk 2006

All of you that keep up with Evan's blog have been touched by CHD's in some way, either by Evan or your own child so, I wanted to post a link to his donation page for the American Heart Association's Kentuckiana 2006 Heartwalk. This is our 2nd walk and we will be walking again this year with other CHD families under "Team Bravehearts". Our main goal in participating in this walk is to raise awareness of CHD's and funds for much needed research. If anyone would like to donate, his personal donation page link is: http://heartwalk.kintera.org/faf/donorReg/donorPledge.asp?ievent=147761&supId=136764053 .

The deadline for donations is September 29th.
Thanks!!!

Monday, September 25, 2006

Swish and Spit

Man have things been crazy around here! For starters Evan has had the Ohio Valley allergy yuckies since the golf scramble. The doctor put him on liquid z-pack (sp?) and when we got home that night I started him on his first dose and I got the medicine dispenser in his mouth and squirted and he turned and ran into the living room and began puking up the pinkish/red med all over the carpets. I was also running a temp. and Eric was still at work so I ran him into the bathroom and washed him off and ran back into the living room scrubbing the carpets (3 or 4 times with resolve and the stain in still there). I called the emergency line at the ped. office and told them what happened and they said, try again. I got him out of the tub and tried to give him the med's again and he instantly began puking and gagging. The next morning I called the ped. office and the doctor called me back and said that he thinks from being on the vent. a few times that Evan possible has a texture adversion because he gets sick so often and so easily so they called him in 10 days worth of amoxicillan. Evan has told everyone of my franticness that night, he says "Mommy ran into the bathroom and put me in the tub and said, oh shit my carpets" nothing like a 2 year old telling everyone about your moment of insanity like I cared more about my carpets than him being sick, or so everyone he has talked to thinks. So, a week ago today we finished the last dose of that. Last Tue. morning Evan woke up saying his teeth hurt and when asking him why he said that, "a snake bit him in the mouth while working on the dryer like Handy Manny." I knew that wasn't case so I dismissed it. Tue. night while brushing his teeth he cried and said his teeth hurt and when pulling out the toothbrush there was blood everywhere. Wed. morning I called the ped. office and they said he probably had thrush/yeast infection from being on amoxicillian so long so they called in another med to swish and spit every 4 hours. Do you hear me, SWISH AND SPIT EVERY 4 Hours for a 2 year old?!?! We started this Thursday and it seems to be getting a little better although he still hasn't gotten the hang of swish and spit, I figured squirting the medicine with dispenser across the gums is kinda like swish, right? He instantly spits it out and cries and gags saying, "Yucky medicine mommy." I'm supposed to call again tomorrow if it is not better, we'll see. All the while my house and my parent's house is a complete wreck because we are both having new kitchen floors put in. I don't think I know the meaning of calm or rest, it's all rush and exhausted. The floors are being finished today so hopefully things will calm down a bit but wait, The heartwalk is this Sat.!!! I'll be busy but that will be fun stuff!

Wednesday, September 13, 2006

2006 Bravehearts Golf Scramble

























The Golf Scramble was a complete success! We had a wonderful turnout of 14 teams and everything went smoothly. Everyone loved the video that played throughout the day and signs around with each child from our team's picture and story, made them feel more connected to our families and more aware at what we have gone through. The speech that was given by the AHA rep. and Benjamin's dad Andy got everyone ready for a great day of golfing for this wonderful cause that we feel so passionate about. Once everything got kicked off my brother and I ran the drink cart around and everyone kept telling us what a wonderful time they were having. It started raining just before everyone got to finish and the pro's said everyone had to come it so the winner's were based off of 12 holes. Everyone came in soaking wet but with huge smiles on their faces. After the ending ceremony we had with prizes and giveaways and people were leaving everyone stated they would be back next year with friends, so this will be an annual event. The pro's at the club said they could not believe this was our first scramble! Our total profit for AHA was about $3000.00. I'm so proud of our little team, our community and the friends we have made. The heartwalk is about 2 weeks away and we personally have about $200.00 left to meet our goal but I believe we can do it. Enjoy the pic's from the scramble. Go Team Braveheart

Friday, September 08, 2006

Ohio Valley

What a week this has been. Besides being stressed to the max that the Golf Scramble is THIS SUNDAY, we are sick. I should have known, it happens every year the week after Labor Day. We spent the whole weekend outside at family events and the weather was just beautiful but when the weather changes from burning hot to cool so quickly it causes a lot of allergy and sinus trouble here in the Ohio Valley. I woke up Tue. morning with a sinus headache and congestion and then Evan woke up Wed. with the same. I feel somewhat better after keeping a dose of Tylenol Allergy Sinus in me every 4 hours but last night Evan seemed to be worse. He woke up this morning at 5:00 and never went back to sleep because of the congestion. I have an appt. for him this afternoon so hopefully it is just allergies. Of course this has been on top of trying to get everything ready for Sunday's Golf Scramble, don't get me wrong it is not all my responsibility, there are 5 families participating but, it has still been a lot of work. Evan also has a "bruiserblister" (feverblister) that he hates and wants to remove, it looks much worse now that he has messed with it! I'll update Monday and let everyone know how the scramble went. Please pray for us!
See link to video that will be played at scramble event below:
View this video montage created at One True Media
Team Brave Hearts 2006

Friday, September 01, 2006

Toddler Sayings

Evan has been so cute and so much fun to listen to lately. The other day he told me, "Mommy, my headfore hurts." At first I was like, what?? Then, "OH, your headfore (forehead.)" He had a conversation with my mom yesterday, "Mamaw, I'll be Christopher Robin and you be Rabbit" Mamaw "Okay, where is Tigger?" Evan "He is hiding, he is a really good dancer." He loves to dance and sing, such the entertainer.
We are full of family reunions this weekend. They are all close and we are looking forward to seeing everyone. Evan is definately looking forward to Munc (Uncle Michael) spending the day with us and swinging at our family park on Saturday.
The Golf Scramble is only 10 days away!!! I'm so excited and nervous at the same time. This has been a lot of work but, I believe it is going to be a huge success. We have 6 families participating in the heartwalk and scramble this year with "Team Bravehearts" and as of today, we are the #1 Friends and Family team in Kentuckiana. We are expecting about 17 golf teams at the scramble and have many company sponsors and prizes. We are blessed to live a community that supports us. If all goes well, we plan to make this an annual event. Go Team Bravehearts!!!
Hope this finds everyone well and enjoy your nice long weekend!

Friday, August 25, 2006

Warning... This is about poop!

This past week or two Evan has been so animated about going to the bathroom. He has been potty trained since late May and has always been like his father and I, very private about going #2, always tells us to "go away" and we know what that means and when he is done he will holler for us to come back. This is the way it has always been. Then about a week or so ago Evan has this fascination with it. He still tells you to "go away" but calls you back many times to have you see his progress and if you happen to walk past the bathroom while he is going you will find him bent over staring down in the bowl. The other day when we got home he told me he had to go poop so we got to the bathroom and he said "go away" so I went to the living room to catch the news and this is the converation we had; Evan yells "Mommy, they are popping out, come look" mommy says "Evan, I don't want to see just let me know when your done" "Mommy come look", mommy goes into the bathroom and says "Evan, your doing a good job, let me know when your done" and goes back into the living room and then Evan "Mommy, you've got to come look, there's a family of poops in here." I cracked up, I could not help myself, a family of poops? He does not get this from his father or I, we are both private about what happens in the restroom but, not Evan he wants everyone to know. I have a good friend who has always had a good sense of humor about poop with her little girl and somehow, though we are not related and Evan has only spent a few hours in her company, Evan has gained her sense of humor about it. This post is for you Beth!!!

Friday, August 18, 2006

It's Friday!

Thanks Munc for posting the results for me Wednesday! We are switching internet companies and cancelled the old one before the new one was up and running, oops! Evan did great at the appointment on Wed., he just loves Dr. McOmber and sat there so big. He usually wants Mommy or Daddy to hold him while Dr. McOmber does the echo but, nooo, this time he wanted to sit all by himself! I was expecting better results than we got, had a % in mind that I thought was a good one (65%-right, 35%-left) so when he said oh great, the results were 71%-right and 29%-left, my heart sank. Then he said, "What's wrong, I'm totally happy with that, we doubled the amount of pressure that was going to the left side, that's great." So, he's the doctor and if he is happy with this than so am I. I love Evan's cardio and the entire office, they are just a great group of people and always are so nice and I really appreciate that. They signed up with our team and are walking with us at the heartwalk, they did last year to, see wonderful people. Thanks again for all your support and prayers for last Friday and this Wednesday!

Wednesday, August 16, 2006

Vent. Scan Results

Evan had his followup for vent scan results today. The results are: pressures to the right are 71%, and pressures to the left 29%. The doctor was very pleased with the results, as the stent has doubled the pressure to the left side. The gradient pressures were 68% on the right, 32% to the left. His heart function was good . They want to do another followup in November. Thanks for all of your prayers.

Friday, August 11, 2006

We are home

We are home and Evan is sleeping. It took 4 sticks this morning to get an IV, up until then Evan had been handling things really well. Because he is on Digoxin they were not able to use the same sleep medicine called Dex which worked really nicely last time but Dex. mixed with Digoxin they said could cause heart failure. They used Versed and Nembutal. They were not able to give him the Nembutal until we got to the nuclear medicine dept. for some reason and there was another baby in there just screaming so Evan fought the med's really hard and that is always upsetting to see. Once they had him to sleep the test only took about 20 min. As soon as Evan woke up they told us to start giving him Coke because Nembutal causes bad headaches and caffiene helps. He was pretty upset that his head was hurting but once we got down the road a ways he calmed down and fell asleep and seems to be resting nicely now. They said the headaches could last all day so, I'm going to rest a bit too, it could be a long night! Thanks for all your prayers, we really appreciate it! Will update when we get the results, could be Wednesday before we get them.

Tuesday, August 08, 2006

Scan is this Friday

Please pray for Evan this Friday as he will be having the Ventilation Profusion Scan early Friday morning to measure the pressures between the left and right sides of his heart. This is outpatient and although they put him to sleep for this, as soon as he wakes up after the scan we will be able to go home. This is the same scan they did before his cath. in April when the pressures were 85% to the right and 15% to the left. The doctors are testing this again to be sure that the stent is working and making the pressures more 50-50. I will post Fri. evening and let everyone know how it went however; I'm sure I will not know the results until the cardio visit next Wed.
I often blog about the trials and tribulations of being a mom but today I wanted to post just a few of the reasons why this little boy has me wrapped around his finger. I wish I could tape him and play it for you so you could hear his sweet little voice when he says, "Mommy, I love you soooo much", or "Pwweease". The way that asks for you to lay down with him so he can run his fingers through your hair while falling asleep. The way that he whispers in his monitor, "Mommy, Daddy, I'm awake." That he asks his daddy 100 times is it dark yet so that they can go outside and see the moon and wish on the stars and that every night he wishes for a sucker. The way he runs to the front door when I leave my mom's for work and waves and blows kisses. To hear him sing Row, Row, Row your boat, "Nerrily, Nerrily, Nerrily, Nerrily." The way your heart breaks when you enter the parking garage at Kosair Childrens Hospital and Evan begins to cry because he knows that the only time we go in a parking garage is there and he knows he is getting ready to get hurt. The way he use to tell the nurses "Last one please" and "Thank You" when getting his RSV shots. The way he believes his bear is real and talks to him, "Bear, you want to play trains, you do, okay!" That we have listened to "He's My Son" so much that Evan knows the words and sweetly sings along and that if he notices tears in my eyes he will ask, "Mommy are you happy" and kisses you until your smiling. The way he reminds me to say prayers at bedtime and remembers those he loves and thanks God for them. He is such a blessing and Mommy and Daddy are totally wrapped around his chubby little fingers!