I only do it once a week

We talked to Kayla's Nanny, my sil, last night and she had 2 Feberal seizures (fever seizures) caused by high sudden spike in fever. The Dr. said she will outgrow them and they can rule out all other types of seizures and neurological problems. So, although it is something they will have to watch and they have medicine to give her to stop them if she has another one, it sounded like the Dr. was confident that she will outgrow this and that there will not be any other side effect problems.

Evan has been a real funny one lately - telling jokes and making comments - he thinks they are hilarious and sometimes they are (and sometimes they aren't.) I picked him up from school the other day and one of the helpers said she took Evan to the potty and he needed to poo-poo. She asked if he needed help, which he replied no. She waited outside the bathroom for him and when he was done he came out with his jeans still fastened and pulled down to his knees. She told him that it is a LOT easier to undo them and that she would help him next time and then they would fasten them back when he was done. Evan told her, "It's not worth it, I only do this once a week."

Prayers for Kayla

My little neice Kayla is at Kosairs today having an EEG done because of the recent seizures she has endured. Kayla we are praying for you today and Evan says your in the "hero club" now too! Hoping that your day went smoothly and that you felt our prayers and they calmed you (Mommy, Papaw and Nanny too!) Can't wait to hear that your home and maybe even want to talk on the phone. Although Evan doesn't talk long, does he? See below pic of Kayla and Evan on their camping trip this past summer.

CHD Awareness Day

Somewhere...someplace... today...
A family is waiting to hear...
Is something wrong with their baby?
The answers aren't quite clear...
This family has entered an unwanted world...
And they just don't know what to expect...
Somewhere...someplace... today...
They first heard the words: heart defect.
And how they hoped this was not true...
And thought... this cannot be...
I too... know just how this feels...
For one day...this was me.
Somewhere...someplace...today...
A man and a woman embrace...
Their baby is in surgery...
They long to see her face...
They haven't got to hold her yet...
Without...a cord or line...
They pace the room awaiting news...
And hope she'll be just fine.
Prayers fill this busy waiting room...
And mom and dad are scared...
Somewhere...someplace..today...
The tiniest hearts are repaired.
Somewhere...someplace...today...
A child's growing fast...
Smiling,laughing,thriving...
His mom thinks...can this last?
It's almost easy...to forget...
That anything is wrong...
Somewhere...someplace..today...
Her child seems so strong.
Somewhere...someplace... today...
A little boy fights...just to live
A father holds his tiny hand...
His love...all he can give...
The doctor's are all baffled...
They fear that he might die...
Somewhere...someplace...today...
A family says goodbye...
Somewhere...someplace...each year..
More than 40,000 families will see...
What it means...when something's wrong...
They'll face a CHD.
Today...for just a moment...
Stop...remember...reflect...
Make time to tell someone you know...
"I've been changed by a heart defect".


Author - Stephanie Husted

Putt Putt Pro's

After everyone else had left these 3 bud's played Putt Putt till way after bedtime! They had a blast!

Party Time

Notice Evan sitting between the "older" girls. These two are his friend Robert's sisters whom Evan requested they also attend his party. Kristin & Olivia, I think Evan loves you two!

Evan getting his bike from Mommy & Daddy

My Baby is 4!!!

I can't believe it, my baby is 4! We have still been battling sickness and I was afraid that we would have to cancel his birthday celebration. After 5 visits to the Dr. in 3 weeks, I think we are finally on the mend. Evan started running another high fever this Wed. night, his actual birthday so off we went to the pedi. again Thur. morning. After 2 blood tests and a flu and strep test they determined after all of that came back normal that he had a sinus infection. We are now on the breathing treatments twice a day (Pulmicort & Albuterol), a allergy medicine (Singular) and an antibiotic (Augmentin). We also spoke with his cardio. due to this 3 weeks of sickness and after reading what the pedi. sent him and read all the test he felt Evan was in good hands and not in harm heart wise. I was a little worried b/c our fellow Brave Heart member Andre' who needs our prayers is still in ICU here at Kosair and his stay seemed to start with a lot of the same issues as Evan - breathing, high fever. By dinner on Thur. Evan's fever broke and you could tell he was feeling much, much better. On Fri. by lunch he was so excited about his party at the Fun Dome he could hardly contain himself. Enjoy the pic's - we had an amazing time celebrating our little man, with such wonderful friends - Thanks to all that came!

Steroids

Well, at Evan's check up last Fri. they still heard wheezing so they increased his breathing treatments to 4 times a day (2 times pulmicort, 4 times albuterol) and added a liquid steroid to it. We are going back today for another check to see if we can cut any of this back or out. My little boy has been such a handful the past few weeks. I'm blaming the steroids but, whew. He gets very aggervated very easily and has had so many tantrams and lots and lots of whining. I really hope once he is over all of this that his temper will return to regular Evan temperment. Also, Evan has been potty trained for almost 2 years and I can't remember him ever, even in the beginning having accidents but since the steroids started on Sat. he has wet the bed twice and had one accident. Pray that we get a good report today. One of our fellow Brave Hearts has RSV and is in ICU here so, please say a prayer for Andre'.
Our house has had 12 showings now and one family came yesterday to see it for a second time. We are praying that all of this happen's in God's timing and that he will lead us when it is time.