They were not able to remove Elliot's tumor yesterday but had to biopsy it. They are waiting on results today to decide the best course of action for chemo. They believe it is stage 3 - please pray.
http://www.caringbridge.org/visit/elliot_rylan
Tuesday, July 28, 2009
Saturday, July 25, 2009
Blessed with Wonderful Work Friends - Pray for Elliot
I feel wonderfully blessed to work with these women. They have been there for me through some rough times and I don't know what I would do without them. A few weeks ago we got to have a wonderful birthday celebration weekend to celebrate a 30th birthday and a 40th birthday. You each mean so much to me!
One of our work friends was unable to be with us that weekend and is going through a nightmare right now. Christy we Love you! Christy's little 1 yr. old Elliot has been undergoing Dr. visits and test to find out why there has been a lingering fever for several weeks. Yesterday they found out that it is a Wilm's Tumor that needs to be removed immediately. Elliot's blood pressure is to high to perform the needed surgery. Pray for his blood pressure to be where it needs to so that the surgery scheduled for Monday can be performed.
Tuesday, July 21, 2009
A Day with Munc
I had an awesome shopping day with my cousins, Aunt and Mom this past Saturday. We definately don't get together often but I loved spending time with them. When I was a kid I went to their house and spent a lot of my summer there. It is hard to get together now that we are grown and have kids of our own but I'm thankful we made time!
Eric was on call and I wanted my Mom to enjoy this shopping day too so, I was in need of a sitter. Evan hasn't stayed anywhere else other than my Mom's and a few afternoon visits with friends. Enter Munc. Munc is my brother, Evan's Uncle Michael. We are very close and Evan has been around him his entire life. As soon as Evan could talk he has called him Munc. Evan now knows his name but he and Munc like the nickname so it has stuck. Anyway... Munc called and offered to spend the day with Evan. Evan was sooo excited. Munc was taking him to the Louisville Science Center to the IMAX and downtown park. When Munc came to get Evan he was in his smart car. I wish I had a picture of Evan looking so big and motioning for Munc to drive away while I was trying to wave and blow kisses. He was ready for his Munc Day.
Evan had a blast and was spoiled much by his beloved Munc.
Eric was on call and I wanted my Mom to enjoy this shopping day too so, I was in need of a sitter. Evan hasn't stayed anywhere else other than my Mom's and a few afternoon visits with friends. Enter Munc. Munc is my brother, Evan's Uncle Michael. We are very close and Evan has been around him his entire life. As soon as Evan could talk he has called him Munc. Evan now knows his name but he and Munc like the nickname so it has stuck. Anyway... Munc called and offered to spend the day with Evan. Evan was sooo excited. Munc was taking him to the Louisville Science Center to the IMAX and downtown park. When Munc came to get Evan he was in his smart car. I wish I had a picture of Evan looking so big and motioning for Munc to drive away while I was trying to wave and blow kisses. He was ready for his Munc Day.
Evan had a blast and was spoiled much by his beloved Munc.
Thursday, July 16, 2009
Another Month & School
Evan's cardio appointment brought no news of change and that is good! Things remained the same again for another month. It is the homograft that is narrowing due to calcification. It stinks that this can't be predicted when a homograft is chosen but it is a chance. Dr. said that the normal # is a 10 and that is what Evan was 1 month post-op in Nov. 08. From Feb. to May it went from 10 to 35. We have now stayed at 35 since April. We were told today that the magic # for another surgery is 50. There is no way to tell when we will hit 50 so we continue to have monthly cardio visit. I'm thankful for today and that for at least this month there is no cath. or open heart scheduled.
Some news we received today is that our county is looking into redistricting... Unfortunately this includes our neighborhood. Yeah... the one we moved into in Oct. so Evan could go to this great new school. Sigh. Freakin sigh. Makes me want to swear. This new change will happen for the 2010-2011 school year. Thanks... let him go to the school 1 year and then move him, great. There is a public hearing to be had and you bet your sweet britches that I will be there.
Some news we received today is that our county is looking into redistricting... Unfortunately this includes our neighborhood. Yeah... the one we moved into in Oct. so Evan could go to this great new school. Sigh. Freakin sigh. Makes me want to swear. This new change will happen for the 2010-2011 school year. Thanks... let him go to the school 1 year and then move him, great. There is a public hearing to be had and you bet your sweet britches that I will be there.
Wednesday, July 15, 2009
Rockies Award Party
Evan's had a great time playing baseball this year! Team Rockies might have had small kids but we had a big time! Awesome kids, awesome parents and an awesome coach. We had a great time with our friends this summer and met some new friends as well. GO ROCKIES! The pictures are from their awards party this past weekend. There is one with Evan and little girl on a float... Evan and her just floated around and talked. She lost her round float and Evan paddled her over to get it. When we left Evan said with a big smile, "Eden is cute." Does anyone else have a 5 year old who already talks about girls???
Wednesday, July 08, 2009
Non Cooking Sweet Tea Summer
It's been crazy here lately. I feel like I'm running around like a mad woman. Work has been crazy and that is all I'm able to say about that. Crazy. I'm thankful I have a job and for the insurance it provides for my family. There are so many around me who no longer are able to say that and, that is scary.
Evan just finished up his 5 days a week for 3 weeks swimming lessons. He loved it and the young lady who was the instructor was so great with them. Evan loves her and we hope to get him signed up for her swim team. I'm glad he enjoys swimming so much and really came a long way from the first lesson to the last. We haven't had a meal at home in forever. I'm ashamed to admit that. It is so hard when you work all day, leave work and get Evan and go straight to swimming lessons. After swimming lessons my girlfriend and I look at each other with sweat dripping from our foreheads and say, "what's for dinner?" I have become addicted to McAlisters sweet tea. If you come visit me that is what we will have for dinner!!!
Talking about addictions... our friends invited us to their family 4th of July get together. Her father in law's favorite holiday is the 4th of July and he does it big! He had some amazing fireworks. Evan wasn't really interested. Want to know why? The reason is that grandpa bought a case of those popper things and gave Evan no less than 20 boxes. All Evan did was walked around popping those things on the ground. We would say, "Ohhh... Evan, did you see that?" He would reply with, "huh??? where are my other boxes of poppers?"
My Mom turned 66 on Sunday and we had everyone over to grill out. We couldn't believe that Mamaw beat us all and was the champion cornhole player!
We had some time together as a family on Fri. night and Evan wanted to go see the new Ice Age movie and also the zoo. We have passes to the zoo and I had planned on taking Monday off and taking him then so I talked him into only seeing the movie. When the movie ended he looked up at us with his long eyelashes and said, "It would be really nice to go to the zoo too and walk around for a bit." The zoo is open Fri. night from 7-8 for zoo members only so we ran up to the gates at exactly 7 and got to stroll around for an hour together. It was nice to be there just the 3 of us and no crowd. We really enjoyed that hour together. The picture is of my guys that night.
P.S.
Could you all please say a prayer for my cousin. Her son is just a year younger than myself and has been battling recurring renal cell carcinoma. He went home yesterday to spend what he has been told the last few weeks of his life with his family. A mothers worse nightmare coming true and my heart aches for them.
www.caringbridge.org/visit/ericmullinix/journal
Evan just finished up his 5 days a week for 3 weeks swimming lessons. He loved it and the young lady who was the instructor was so great with them. Evan loves her and we hope to get him signed up for her swim team. I'm glad he enjoys swimming so much and really came a long way from the first lesson to the last. We haven't had a meal at home in forever. I'm ashamed to admit that. It is so hard when you work all day, leave work and get Evan and go straight to swimming lessons. After swimming lessons my girlfriend and I look at each other with sweat dripping from our foreheads and say, "what's for dinner?" I have become addicted to McAlisters sweet tea. If you come visit me that is what we will have for dinner!!!
Talking about addictions... our friends invited us to their family 4th of July get together. Her father in law's favorite holiday is the 4th of July and he does it big! He had some amazing fireworks. Evan wasn't really interested. Want to know why? The reason is that grandpa bought a case of those popper things and gave Evan no less than 20 boxes. All Evan did was walked around popping those things on the ground. We would say, "Ohhh... Evan, did you see that?" He would reply with, "huh??? where are my other boxes of poppers?"
My Mom turned 66 on Sunday and we had everyone over to grill out. We couldn't believe that Mamaw beat us all and was the champion cornhole player!
We had some time together as a family on Fri. night and Evan wanted to go see the new Ice Age movie and also the zoo. We have passes to the zoo and I had planned on taking Monday off and taking him then so I talked him into only seeing the movie. When the movie ended he looked up at us with his long eyelashes and said, "It would be really nice to go to the zoo too and walk around for a bit." The zoo is open Fri. night from 7-8 for zoo members only so we ran up to the gates at exactly 7 and got to stroll around for an hour together. It was nice to be there just the 3 of us and no crowd. We really enjoyed that hour together. The picture is of my guys that night.
P.S.
Could you all please say a prayer for my cousin. Her son is just a year younger than myself and has been battling recurring renal cell carcinoma. He went home yesterday to spend what he has been told the last few weeks of his life with his family. A mothers worse nightmare coming true and my heart aches for them.
www.caringbridge.org/visit/ericmullinix/journal
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