Tuesday, June 29, 2010

Surgery was decided but no date yet...

Heart board was held last night and Evan was presented. That is all the information I really have as of now. Evan's Dr. is working without his partner this week and so his time is thin. Surgery was decided and he said he did tell them we needed it in time to get him back to school. We should be getting a call with a date soon and if it's in time to get him back to school it should be in the next 3-4 weeks. Evan goes between seeming to forget about it, to crying and having a hard time. As of last Tue. he seemed to have forgotten and hadn't asked anymore questions. Yesterday my Mom called (she keeps him during the summer) and said he hadn't been himself all day and didn't want to do anything. She said she was doing laundry and when she walked back into the room he was upset and said it was because the Dr.'s were talking about him and that he didn't want open heart that his heart felt fine. I left work and went and got him and he asked me if I knew yet and I told him no but to not be scared... that Dr. M will only do it if he thinks he has to and that if he does that God is always with him protecting him and that he has the best Dr.'s and that they will make sure he is okay. I took him to see Toy Story 3 last night just to keep our minds busy - it was so good. When we left Evan said "I'm never getting rid of blue puppy, bear or putchers." These are stuffed animals he has had since he was born. Today she called and said that he is following her everywhere... sat outside of the bathroom while she got ready this morning but, that as long as she is with him he at least is up for doing things - riding his bike, etc. I'm leaving early again today and taking him to the zoo. Say a prayer for our little guy... for him to feel the protection and security he needs from God and us as parents. Help us to know how to answer his questions. A friend recently showed a picture to me of a hospital surgery room with Jesus standing behind the Dr.'s. She had it framed and it was in their hospital room during their last stay. What a wonderful picture.


3 comments:

GoofyJ said...

Keep us posted - I hope all goes well! Maybe I can come down for a visit now that we aren't too far away - we've finally moved and are working on settling in.

I love the picture by the way!

The Portas said...

I have seen that painting before and I LOVE it. It makes me cry almost every time I look at it.

It makes me so sad that Evan feels such anxiety about the surgery. I want to give him a giant hug! I will most definitely pray for peace for him, and for you.

Kathy said...

I love that picture..
I wish that I had wise words to comfort Evan...I seriously can't even imagine going through these surgeries when Isaac is that age. (I'll be calling you MANY times for suggestions).
You're such an awesome mom Sarah...distraction is probably best at his age. Tell Evan that i haven't even see Toy Stroy 3 yet...Joe took the boys and left me home with cry baby isaac!
Hug Evan tight for us.
kathy