Monday, June 30, 2008
Thursday, June 26, 2008
Back to the cath. lab
He said the same thing we talked about before... he doesn't want to miss out on time when they might regret it in the future... Dr. Kim thought that the decrease in %'s the scan showed (80-20) needs a cath. to check things out and either dialate the stent or insert another one, Dr. McOmber agrees. He said Dr. Kim is very busy, summer surgeries trying to get in before school starts and before cold/flu/RSV season for little ones.... But that, Dr. Kim's office will be calling me to schedule it. Dr. Kim wants to review Evan's file, past cath's and past scans before scheduling the cath, so he wasn't sure when I would hear from him but soon.
So... the waiting begins again. I was mostly expecting the cath. but was going to be super happy if they thought it could wait. As always I just want the best for Evan and have to trust God and our beloved Dr. that this is what is best.
In the meantime... we will continue to enjoy summer. Hope all of you are as well.
Monday, June 23, 2008
Baseball weekend


Sunday, June 15, 2008
Happy Father's Day!
Monday, June 09, 2008
Dr.'s thoughts on scan
Just talked to Dr. McOmber.... he said he wasn't really surprised that the LPA's % of pressure that it sends to the lungs had gone down again... Evan is growing - everything is growing except for that Left Pulmonary Artery - which is the same size since they stented it in Mar. 2006. He is not sure if it is time for another cath. so he is taking it to the board to get the other Dr.'s, especially Dr. Recto the angio specialist in our areas that did his stent, opinion. He said the reason for this would be to prevent Evan's health from ever being less than his 100%.... that we should not see Evan get worse b/c they are keeping on top of things with the tests/scans and caths. He also said this continious drop of 4-5% pressure a year is normal since his is growing and does not mean the conduit/valve replacement surgery is sooner than they originally hoped, that they still hope to hold off until his is larger and could possibly get an adult size with 1 final surgery - or who knows how technology could change before he needs that. That as long as they stay on top of it with scans and caths we can delay surgery and hope for a less invasive approach by the time it is required. He said he thinks Dr. Recto will want to do another cath. maybe not tomorrow but, maybe in 6 months or after next years scan and either dialate the stent or place a stent inside of the old stent expanding it... He said he would be talking to me later this week after he presents Evan's scan to the board at their weekly.
We spent a nice weekend together, playing T-Ball and going to the Circus. I had a not so nice ear infection and at my follow up for broncitis got more meds for that and also told broncitis had gone into pneumonia... Am I ever going to get over all of this??? Dr. said something about rest... drinking lots of fluids... staying out of the heat... I'm wondering if we live in the same town with how hot is has been and also if they have any children, LOL.
Friday, June 06, 2008
Vent. Scan 2008 Results
I just got the results last night, (was beginning to get worried that the hospital lost the test since they took so long to forward it to the cardio - oh how mad I was going to be, after what he went through if he had to do it again.) right before Evan's first T-Ball practice for the year, man it was so hot. I'm not sure what the results mean as another Dr. called and gave them to me b/c Dr. McOmber is on vaca. until Monday. The results were 80-20.... they were 85-15 before the stent and then the stent raised it to 71-29 and then last year is was 76-24. So... it has been worse - right before the stent in '06 but... they were concerned last year with the 76-24 and it is another 4%... seems to decrease on the left side 4-5% every year.... although they did a cath. last year and didn't do anything so maybe this will be okay... I really have no idea until I talk to Dr. McOmber.
This hasn't been the best of weeks for me.... I've been full of anxiety waiting on these results and now that I have them, I can't talk to Dr. M until Monday. We also got more upsetting news that the house we had held a contract open on since our house contract that fell through, in hopes that when our house eventually sold we could move in, asked us to release them from the on-going contract. I can't blame them as it has been since March but... disappointing for us. I know this means there is something better for us... that maybe this house wasn't meant for us, it is still hard once you set your heart on something.
This is also Eric's busy time of year and we practically haven't seen him since last Friday. We miss him and it is hard for Evan when he isn't home at night.
We have planned lots of family time this weekend! We are taking Evan to the Ringling Bros. and Barnum & Bailey Circus tomorrow!!!
Saturday, May 31, 2008
He's Brave
Thursday, May 22, 2008
Last Day of Pre-School & Vent Scan #4
Tuesday, May 13, 2008
I'm too old for Slumber Parties & Mother's Day
Friday, May 09, 2008
House on the market, Puppies and Kidney Stones, oh my!
Tuesday, April 22, 2008
Greatest Munc
I have learned a lot during this process, maybe that was the point. I worked myself up so much - to the point last week that everything crashed and I became very sick. I was in bed for 3 days - 2 of them with a fever of 103.8 - the absolute worse case of strep throat I've ever had. My anxiety always gets the best of me and I'm thankful for the lessons I've learned and am feeling at peace trusting that Jesus will makes things right and just what we need.
This Friday is my brother's birthday and we got to celebrate with him and his family this past Sunday. When I was feeling better late last week Evan and I went with my Mom shopping and Evan wanted to get Munc (his nickname for his Uncle Michael) a card just from him. He picked it out and was very excited. On Saturday we wrapped his gift and Evan got out his crayons and decorated the card and signed his name to it. He wanted me to find some stickers but, I couldn't find any other than the Hallmark sticker to close the envelope with - Evan wanted more so he asked for his crayons again and decorated the outside of the card. As he was coloring he said, "Mommy, this looks like scribbles, will Munc like it?" I answered of course that his coloring was beautiful. He continued to color and said, "For my Munc, the greatest Munc I've ever had!" With that he was done and handed the card over with a smile, knowing, especially after the story was shared that his card would be Munc's most beloved present.
Sunday, April 06, 2008
Isn't he the cutest?

Tuesday, March 25, 2008
Easter Story Mix-Up
Saturday, March 22, 2008
1st visit to the Dentist
Saturday, March 08, 2008
Snow, Snow, Snow!
Thursday, March 06, 2008
Evan's 1st Field Trip
Wednesday, February 27, 2008
I only do it once a week
Evan has been a real funny one lately - telling jokes and making comments - he thinks they are hilarious and sometimes they are (and sometimes they aren't.) I picked him up from school the other day and one of the helpers said she took Evan to the potty and he needed to poo-poo. She asked if he needed help, which he replied no. She waited outside the bathroom for him and when he was done he came out with his jeans still fastened and pulled down to his knees. She told him that it is a LOT easier to undo them and that she would help him next time and then they would fasten them back when he was done. Evan told her, "It's not worth it, I only do this once a week."
Monday, February 25, 2008
Prayers for Kayla

Thursday, February 14, 2008
CHD Awareness Day

Somewhere...someplace... today...
A family is waiting to hear...
Is something wrong with their baby?
The answers aren't quite clear...
This family has entered an unwanted world...
And they just don't know what to expect...
Somewhere...someplace... today...
They first heard the words: heart defect.
And how they hoped this was not true...
And thought... this cannot be...
I too... know just how this feels...
For one day...this was me.
Somewhere...someplace...today...
A man and a woman embrace...
Their baby is in surgery...
They long to see her face...
They haven't got to hold her yet...
Without...a cord or line...
They pace the room awaiting news...
And hope she'll be just fine.
Prayers fill this busy waiting room...
And mom and dad are scared...
Somewhere...someplace..today...
The tiniest hearts are repaired.
Somewhere...someplace...today...
A child's growing fast...
Smiling,laughing,thriving...
His mom thinks...can this last?
It's almost easy...to forget...
That anything is wrong...
Somewhere...someplace..today...
Her child seems so strong.
Somewhere...someplace... today...
A little boy fights...just to live
A father holds his tiny hand...
His love...all he can give...
The doctor's are all baffled...
They fear that he might die...
Somewhere...someplace...today...
A family says goodbye...
Somewhere...someplace...each year..
More than 40,000 families will see...
What it means...when something's wrong...
They'll face a CHD.
Today...for just a moment...
Stop...remember...reflect...
Make time to tell someone you know...
"I've been changed by a heart defect".
Author - Stephanie Husted
Saturday, February 09, 2008
Putt Putt Pro's
After everyone else had left these 3 bud's played Putt Putt till way after bedtime! They had a blast!







